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Elder Care 101

We are all doing it. The generation caught between grown children suddenly producing grandchildren and the need to attend to our aging parents. I am an exception in that I buried my parents many years to soon and my children have yet to grace me with grandchildren. But so many of us are in this transition stage of life.

I listen to the women I meet in the store who are juggling the role of grandmother, and yes, they can’t wait to spend a moment with that incredible new little being; they can then hand it off to its rightful caregiver, because they have earned those moments of total love between something so innocent and precious.

I also watch Wilson struggle with his own battle to let his mother grow into her declining state, and still do everything in his power to delay her ultimate demise. He has learned to accept so much reverse responsibility. This is the person who wiped your butt and now needs you to coördinate your schedule around their bodily functions.

“Ma, I have to finish doing my laundry can you wait ’til we get home?”

“No Son, bring me a clean diaper, I can use the restroom at the laundromat.”

“So I’m walking across the parking lot with an adult diaper in my hand thinking, my life must be over, right?”  “What happened to Woodstock and Vietnam and all our dreams as a generation?!!” Wilson laments.

His ability to adapt to the rhythms that are her last years or days surprise me as much as his outbreaks of resistance. This is what life is handing you at the moment and there will come a day when you will give your left arm to change her diaper and have one more word, one more intimate touch you never knew was important.

“She’s like my old dog, Tuffy.” he proclaimed as he came up the walk tonight. “She sleeps all the time but at least unlike Tuffy she doesn’t make funny noises all day. She just sleeps.”

Between cat naps, Mary thanks him for his kindness, no matter if they are cutting wood or fixing lawn tractors, or doing his laundry; she is with her son and not alone in some institution. The key to “Elder Care 101” is no one wants to become obsolete and cast off to the side; to be “visited” on Sundays and treated as a fossil. Integrate, deal with the intimate details and move on.

These nights, when I know Wilson just needs an “adult” break, a time when he can spew and rant, and sometimes listen to my ranting spew about life, Mary spends her time sleeping in the car. It’s not the same as having a baby or a dog, because the reality is the close, innocuous space of the car is more comfortable than a hospital bed or a lazy-boy recliner, her other two options. Before you judge Wilson, understand that he has taken on the responsibility for a “new born” in the shape of his mother. He can’t coddle and grow her into anything. She is actively dying (not the technical, medical, hospice term for active perhaps) and he is keeping her with him, every minute, every hour. When his departure time, to pick up the sushi take-out dinner we agreed to share, is delayed because Mary suddenly declared the needed for a bowel movement, understandably he is rattled.

A hurried meal is eaten standing, so we can glimpse out the window at the car regularly. When dinner was over, I walked out with Wilson to say goodnight to Mary. She is tiny, a shrunken “candy wrapper” as my sister would say, of who she was just a year ago when she turned 85 on the 4th of July. But her hands are warm, she is loving and calm.

He muddles through somehow. We all do and what some see as heroic, others see as blindingly dull. Perspective is key in life and elder care.

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8 comments on “Elder Care 101

  1. Touring NH says:

    Challenging doesn’t even begin to describe elder care. I can empathize with Wilson. I’ve been there, I’ve done that. I would do it again. When Mary has taken her last breath, Wilson can sleep at night knowing he did his best to make her last days happy and cared for. So many people in his situation throw up their hands and declare they can not do it and an institution is best. They never realize what they are going to miss. I have never regretted being there (no matter how hard it was) when my mom took her last breath. I couldn’t have lived with myself if I had been at home waiting for the phone call.

    1. Agreed Laura and so beautifully put. The sacrifices he makes today will soothe his pain when she is gone…

  2. julieallyn says:

    When the time came for my dad — after eight years of battle with prostate cancer — to enter hospice arrangements were made to keep him at home. A hospital bed was brought in to the living room and Mom and us six girls instructed how to change his catheter and otherwise attend to him.

    I was there with Mom and one of my sisters to sit with Dad his last night on this earth. It was a long, horrible night but I wouldn’t have missed it for the world. All of us struggled to remain awake and at times would nod off. We’d awaken in a panic so afraid we’d have missed his passing. At 5:00 the next morning he breathed his last. Words cannot convey what I experienced in that moment. I’d never seen someone die before and it was a heart-wrenching moment but one of relief as well that his suffering was over.

    Hard stuff indeed.

    1. Juliealyn, thanks for your heart-felt comment. I do hospice and had it for both my parents. Allowing death with dignity, or at least as much as possible is a gift.

      Thank you for sharing.

  3. I like to think that part of what we learned from Woodstock was how to care for each other, and Wilson confirms that. He’ll never regret it.

    1. Truth be known,we should all take a little more time to recognize this…Thank you for pointing it out…

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